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Orphanet | patient registries

Search for patient registries and biobanks relevant to rare diseases at the portal for rare diseases and orphan drugs

Orphanet | patient organisations

Portal for rare diseases and orphan drugs: patient organisations listing

Conversations: ethics, science, stem cells

Human embryonic stem cell lines are generated from blastocysts - early human embryos. But what are blastocysts, and when does personhood begin? What justifies research? Doctors, scientists, ethicists, theologians and a patient bring their different points of view.  This film aims to encourage open debate about the ethical issues around stem cell research. It is structured in chapters, each addressing a key ethical question.

A stem cell story

This 15-minute film provides an engaging, accessible and visually stunning introduction to the world of stem cell research. It uses innovative hand-drawn animation, beautiful cell photography and documentary interviews to capture the fascination and complexity of this cutting-edge area of science.

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