Patient organizations & information

General information for patients, their families and caregivers

A closer look at stem cell treatments - ISSCR website designed to equip patients, their families and doctors with tools and information to help make decisions about stem cell treatments.
ISSCR Patient Handbook on Stem Cell Therapies (PDF file)

Alzheimer's Disease

Alzheimer's Society (UK)
Alzheimer Scotland
Alzheimer Europe
Alzheimer's Research Forum - This research-oriented website reports on the latest scientific findings, from basic research to clinical trials; creates and maintains public databases of research data and reagents, and hosts discussion forums to promote debate, speed the dissemination of new ideas, and break down barriers across the numerous disciplines that can contribute to the global effort to cure Alzheimer's disease.

Motor Neuron Disease

(also known as ALS or Lou Gehrig's Disease)
The National Institute of Neurological Disorders and Stroke - Amyotrophic Lateral Sclerosis information page
Motor Neuron Disease (MND) Association
MND Scotland

Multiple Sclerosis

The European Multiple Sclerosis Platform
The Multiple Sclerosis Society
Multiple Sclerosis Trust
The National Insitute of Neurological Disorders and Stroke - Multiple Sclerosis information page

Muscular Dystrophies

Action Duchenne - aims to offer a unique forum for sharing information and ideas in the search for a cure and better medical care for Duchenne and Becker. This link takes you directly to a blog post by Professor Terry Partridge about stem cells and muscular dystrophy.
Muscular Dystrophy Campaign (UK)
Association Français contre les Myopathies

Parkinson's Disease

European Parkinson’s Disease Association
Parkinson’s Disease Society (UK)
The National Institute for Neurological Disorders and Stroke - Parkinson's disease information page
PDTrials - a collaborative initiative of Parkinson’s organizations dedicated to increasing education and awareness about clinical research. Trials listed are in North America, but lots of useful information for anyone with Parkinson's. In English and Spanish.