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Links to clinical trials information for patients

A collection of searchable, categorized links for patients to disease-specific and general information.
Organization Description Disease Clinical trials information
ISSCR: a closer look at stem cell treatments Helps patients evaluate stem cell treatments general general
Notre Recherche Clinique Information on clinical trials and how to participate in clinical research in France. Includes searchable database. country specific
ALS Association clinical trials motor neurone disease clinical trials database
ALS LIGA Belgie charity motor neurone disease country specific
Asociace muskulárních dystrofiků charity muscular dystrophy general
Association Francaise des Diabetiques charity diabetes country specific
Associazione Italiana Sclerosi Laterale Amiotrofica charity motor neurone disease country specific
Associazione Italiana Sclerosi Multipla MS charity. Includes research summaries and a feature on stem cells. multiple sclerosis general
ClinicalTrials.gov clinical trials database general clinical trials database
Deutsche Diabetes Gesellschaft charity diabetes country specific
Deutsche Gesellschaft für Muskelkranke e.V. –DGM- charity motor neurone disease country specific
Deutsche Multiple Sklerose Gesellschaft Bundesverband e.V. charity multiple sclerosis general
Deutscher Rollstuhl-Sportverband e.V. (DRS) charity spinal injury general
Diabetes for Bundet charity diabetes country specific
Diabetesliitto charity diabetes country specific
DMD registry Patient registry to help accelerate new clinical trials. Also has info on current trials. muscular dystrophy general
European Huntington's Disease Network Research network - patients and relatives can contact (anonymously) to be connected with HD experts in Europe Huntington's disease general
FRAGILE Suisse Swiss Association for brain-injured people stroke country specific
France Parkinson charity Parkinsons disease country specific
Gesellschaft für Muskelkranke charity motor neurone disease general
Inspire patient social network general general
International Diabetes Foundation Europe charity diabetes general
Irish Motor Neurone Disease Research Foundation charity motor neurone disease general
Maltese Diabetes Association charity diabetes country specific
Michael J Fox Foundation Helps people find opportunities to participate in Parkinson's clinical trials. Parkinsons disease clinical trials database
MND Scotland charity motor neurone disease general
MS Society charity website - includes summaries of phase II & III trials in UK open to people with MS multiple sclerosis country specific
MS Trust charity multiple sclerosis general
MS Web charity website - includes summaries of clinical and preclinical research multiple sclerosis country specific
Multippel Sklerose Forbundet charity multiple sclerosis general
Muscular Dystrophy Campaign Charity. Includes searchable clinical trials database plus clinical trials FAQ. muscular dystrophy clinical trials database
Neurologiskt Handikappades Riksförbund Offers information, support and advice. Include summaries of research in various diseases via a "Neuro Wizard". neurological diseases general
NHS Clinical Trials Database includes searchable database, articles and information clinical trials database
Parkinson Schweiz Parkinson's charity. Includes information on the disease, treatments and research directions. Parkinsons disease country specific
Parkinson's Association for Ireland charity Parkinsons disease general
Parkinson's Disease Trials clinical trials database Parkinsons disease clinical trials database
Parkinson's Movement Research-focussed, patient-driven platform for information and canvassing within the Parkinson’s community. Parkinsons disease general
Parkinson's UK Parkinson's support and research charity Parkinsons disease general
Parkinsonforeningen charity Parkinsons disease general
Patients Like Me patient social network: includes clinical trials matching tool clinical trials database
Stroke Trials Registry searchable clinical trials database stroke clinical trials database
The Cure Parkinson's Trust Research-focused charity. Includes specific information on research projects and clinical trials. Parkinsons disease general
The Parent Project Muscular Dystrophy charity muscular dystrophy general
Type 1 Diabetes TrialNet clinical trial database diabetes general
Unione italiana lotta alla distrofia muscolare Muscular dystrophy charity. Includes information on research. muscular dystrophy country specific
Vlaamese vereniging neuromusculaire aandoeninge charity muscular dystrophy general
World of MS stem cell therapies in MS: information booklet for patients multiple sclerosis clinical trials database