Links
Stem cell and related links.
Patient organizations & information
General information for patients, their families and caregivers
A closer look at stem cell treatments - ISSCR website designed to equip patients, their families and doctors with tools and information to help make decisions about stem cell treatments.
ISSCR Patient Handbook on Stem Cell Therapies (PDF file)
Alzheimer's Disease
Alzheimer's Society (UK)
Alzheimer Scotland
Alzheimer Europe
Alzheimer's Research Forum - This research-oriented website reports on the latest scientific findings, from basic research to clinical trials; creates and maintains public databases of research data and reagents, and hosts discussion forums to promote debate, speed the dissemination of new ideas, and break down barriers across the numerous disciplines that can contribute to the global effort to cure Alzheimer's disease.
Motor Neuron Disease
(also known as ALS or Lou Gehrig's Disease)
The National Institute of Neurological Disorders and Stroke - Amyotrophic Lateral Sclerosis information page
Motor Neuron Disease (MND) Association
MND Scotland
Multiple Sclerosis
The European Multiple Sclerosis Platform
The Multiple Sclerosis Society
Multiple Sclerosis Trust
The National Insitute of Neurological Disorders and Stroke - Multiple Sclerosis information page
Muscular Dystrophies
Action Duchenne - aims to offer a unique forum for sharing information and ideas in the search for a cure and better medical care for Duchenne and Becker. This link takes you directly to a blog post by Professor Terry Partridge about stem cells and muscular dystrophy.
Muscular Dystrophy Campaign (UK)
Association Français contre les Myopathies
Parkinson's Disease
European Parkinson’s Disease Association
Parkinson’s Disease Society (UK)
The National Institute for Neurological Disorders and Stroke - Parkinson's disease information page
PDTrials - a collaborative initiative of Parkinson’s organizations dedicated to increasing education and awareness about clinical research. Trials listed are in North America, but lots of useful information for anyone with Parkinson's. In English and Spanish.
Spinal Cord Injuries
European Spinal Cord Injury Federation - pan-European federation of organisations representing people with spinal cord injuries
ICCP - International Campaign for Cures of Spinal Cord Injury Paralysis
Stroke
Stroke Alliance for Europe - listing of European patient organizations
The Stroke Association
The Stroke Trials Directory of the Internet Stroke Center
The National Institute of Neurological Disorders and Stroke - stroke information page
Type 1 Diabetes
Juvenile Diabetes Research Foundation International
Other information for patients
http://www.progress.org.uk - infertility and genetic disease
European Society of Human Genetics - genetic diseases and genetic testing
Stem cell organizations, networks and consortia
Links to stem cell organizations, networks and consortia around the globe.International stem cell organizations
ISSCR - International Society for Stem Celli Research
ICSCN - International Consortium of Stem Cell Networks
SSSCR - Student Society for Stem Cell Research
Genetics Policy Institute - nonprofit organization dedicated to establishing a positive legal framework to advance stem cell research.
European stem cell organizations, networks and consortia
On this page
Research consortia (FP6/FP7)
BetaCellTherapy
BEST stem cells
EndoStem
ESTOOLS
EU Human Embryonic Stem Cell Registry
EuroStemCell (FP6 research consortium, 2004-2008)
EuroSyStem
NeuroStemCell
OptiStem
Purstem
REMEDiE: Regenerative Medicine in Europe
Stem-HD
National and regional stem cell networks
France
STEM-Pole (Paris Regional Stem Cell Network, France)
Germany
German Society of Stem Cell Research
Stem Cell Network North Rhine Westphalia
Norway
Switzerland
Swiss Stem Cell Network
Stem Cells and Regenerative Medicine National Research Programme (NRP63)
United Kingdom
Scottish Stem Cell Network
East of England Stem Cell Network (EESCN)
North East England Stem Cell Institute
London Regenerative Medicine Network
regeNer8
UK National Stem Cell Network - archive website, as the UKSCN ceased operation in 2011
Other relevant organizations
The Mason Institute, based at the University of Edinburgh, serves as an interdisciplinary research hub aimed at investigating the ethical, legal, social and political implications and impacts of new technologies and practices in medicine and the life sciences.
North American stem cell networks
Asia Pacific stem cell organizations, networks and consortia
SNAP - Stem Cell Network Asia Pacific
Australasian Society for Stem Cell Research (ASSCR)
Australian Stem Cell Centre
Singapore Stem Cell Consortium
Stem Cell Society Singapore
Stem cell resources - reference & public opinion
Online reference resources for teachers, students and others interested in finding out more about stem cells. For more detailed resource listings, check out our searchable catalogue of stem cell resources.
Public opinion on stem cell research and regenerative medicine
The Public, Political Parties, and Stem-Cell Research
Article in the New England Journal of Medicine analysing public attitudes to embryonic stem cell research in the US and in Europe.
N Engl J Med 2011; 365:1853-1856
US attitudes towards human embryonic stem cell research
Article in Nature Biotechnology based on 2009 survey data (subscription required).
Nature Biotechnology 29 484–488 (2011) doi:10.1038/nbt.1891
Europeans and Biotechnology in 2010 - Winds of change?
Includes a section on regenerative medicine. The seventh in a series of surveys of public perceptions of the Life Sciences and Biotechnology. Conducted in February 2010, published October 2010.
Download full report (PDF file, 1478KB)
Stem cell dialogue
The largest ever public and stakeholder dialogue on stem cell research in the UK, commissioned by the Medical Research Council (MRC) and the Biotechnology and Biological Research Council (BBSRC). Dialogue activities took place in summer 2008 and over 200 members of the public took part in workshops which ran simultaneously in London, Cardiff, Bristol Newcastle and Edinburgh. In addition, nearly fifty stakeholders were interviewed from fields such as science, medicine, industry, ethics and religion. The report was released in December 2008, and findings are summarised on the MRC website.
Eurobarometer - Europeans and Biotechnology in 2005: Patterns and Trends
This report, the sixth in a series on attitudes to biotechnology, is based on a representative sample of 25,000 respondents - approximately 1,000 in each EU Member State. It covers a variety of biotechnology issues, including stem cell research.
Download executive summary (5 pages, PDF file, 33KB)
Download full report (PDF file, 610KB)
Reference materials
EuroStemCell site glossary
Online glossary of words and phrases commonly used in stem cell research.
All Things Stem Cell visual glossary
Online glossary of terms used in stem cell research, with accompanying images and diagrams to help explain the concepts. Produced by Teisha Rowland, a PhD Graduate Student in Molecular, Cellular, and Developmental Biology at the University of California, Santa Barbara.
Understanding Stem Cells
An educational primer by the US National Academies "designed to provide basic knowledge to facilitate thinking about and understanding the scientific and ethical issues surrounding stem cells."
Poster on pluripotent cell isolation for regenerative medicine
This poster, available as a PDF download from Nature Reviews Molecular Biology, compares and contrasts the properties of pluripotent embryonic stem cells with those of laboratory-generated pluripotent cells. See also the accompanying glossary.